
Holidays have a way of revealing what has been changing quietly throughout the year.
Holidays have a way of revealing what has been changing quietly throughout the year. Families gather, routines shift and suddenly we see what daily life at a distance can hide. A parent is a little more unsteady. A spouse repeats the same question. A holiday meal becomes overwhelming. Many caregivers realize in December that something is different and that planning cannot wait.
This is happening across the country. More than fifty eight million Americans are over sixty five, yet the number of beds in senior living settings is far smaller. Independent living, assisted living, memory care and skilled nursing are often discussed as if they are steps on a single path, but each carries its own qualifications, limits and expectations. When families understand those differences early, they are better prepared for the moments when life asks for a decision.
My parents and I began exploring senior living long before it was absolutely required. My dad, who lives with Parkinson's, understood that the disease would progress. He knew my mom's cognitive changes were real. He wanted consistency and community rather than the unpredictability of in-home care. He liked the idea of meals prepared, staff present and familiar faces greeting him each day.
We toured communities together. I researched the options and tried to anticipate what they might need in the future. They chose a community near their home, a place where they already knew people and where the landscape felt familiar. It came with a long wait list for independent living, more than a year. They signed up anyway. It may not have been the place I would have chosen for them, but autonomy mattered to them, and supporting that decision mattered to me.
Over a year later the call finally came. By then my parents no longer qualified for independent living. Their health had shifted, and they were moved directly into assisted living. The transition, especially for my mother, was painful, disorienting and emotionally heavy. Still, they found their footing. They made friends. They created a rhythm. They did not require help with bathing or dressing because they helped each other. They simply needed safety, meals, laundry and a social world around them.
Progressive diseases do not move in straight lines. They move in seasons. One fall was followed by another just weeks later. We rushed my father to the emergency room expecting another surgery and more rehab, only to be told on the way out of their apartment he could not return to assisted living unless he enrolled in hospice and received twenty four hour care indefinitely. At the same time, we were told we had to decide by 1 p.m. the next day whether my mother would move into memory care or leave her home.
The timing and delivery were abrupt, shared while we were already overwhelmed and rushing to the hospital. I wish the conversation had been handled with more care. Even so, I know my mother is safe. She is in a structured environment with trained staff and regular meals, providing the safety and support she needs.
The days that followed were a blur of decisions, paperwork, and intense emotions. The financial demands were staggering. My dad could only return to assisted living with private twenty-four-hour care and hospice, while my mother would need memory care in a separate unit at the same time. The combined cost was more than any family could sustain. Rehab was not an option for him; he was too fragile. We were fortunate to bring him into our home on hospice, surround him with love, and provide round-the-clock care. But the guilt of having my parents separated is something I carry every day.
My mother does not understand why she had to move. She does not understand why she cannot take care of my father. She does not understand why they cannot live together. Some days she believes I love him more. Other days she is clear, grateful and aware that he is safe here. We bring her to visit him every day. She has caregivers who support her in her own space. We wrap both of them in as much steadiness and tenderness as we can. Still, it is a season that holds sorrow, gratitude, exhaustion and small moments of joy in the same hands.
It is important for families to know that assisted living and memory care communities are licensed but not heavily regulated from a consumer standpoint. Each community sets its own policies about where assistance ends and what services are included. Evictions are generally legal, even for residents with progressive diseases such as Alzheimer's. Facilities often have broad discretion to require families to bring in additional care if needs exceed what they provide, sometimes at significant cost. Policies can also change over time, meaning that what a facility can provide today may not be guaranteed tomorrow.
For families, the best protection is knowledge. Reading a community's Admission and Retention Policy carefully, asking detailed questions, and thinking ahead about how a loved one's needs might evolve can prevent surprises and help families plan with confidence. Understanding these realities before a crisis occurs can save families from confusion, impossible decisions, and emotional distress.
Families deserve clarity long before a crisis arrives. Here is the simplest way to understand the landscape:
Independent Living For older adults who are fully independent but want community, meals, transportation, and maintenance support. Medical care is not included.
Assisted Living For individuals who need help with daily tasks such as medications, bathing, or dressing. It provides meals, housekeeping, and social activities but only limited medical care. Communities can require a resident to move when needs increase.
Memory Care For people living with Alzheimer's or other dementias. These settings offer structured days, secure environments, and staff with specialized training.
Skilled Nursing For people who need twenty-four-hour medical care, rehabilitation, or management of complex conditions. This is the highest level of medical support outside of a hospital.
If someone you love lives with a progressive disease such as Parkinson's or Alzheimer's, start early. Learn the terms. Ask what happens when needs increase. Ask how notice is given if someone must leave. Ask what support is available when crises arrive at inconvenient hours. It is not pessimistic to plan. It is practical, protective, and compassionate.
My parents used the assisted living services for only a few weeks out of two years. That is common. And assisted living communities can give thirty days notice when needs exceed what they can safely manage. It is painful, but it is part of the system.
This is one of the hardest chapters we have walked as a family. It is happening during the holidays and during everyday life that keeps moving whether you are ready or not. Even so I am grateful to be able to care for my father in our home. I hope my mother feels the depth of the love surrounding her, even on days when she cannot name it.
To everyone navigating these decisions now, you are not alone. And you deserve clear information, steady support, and the space to honor your own heart along the way.
From our Alula family to yours, we wish you a season filled with warmth, love, and moments of peace. May your holidays bring comfort in the company of those you hold dear, and may the new year bring strength, joy, and hope to every day of caregiving and life. Thank you for allowing us to walk alongside you on this journey—we are honored to be part of your story.
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