Keeping a Parent Social When Parkinson's and Dementia Make It Hard
Helping our loved ones feel socially connected, even when it is hard.
When Going Out Feels Too Hard
I know firsthand how challenging it can be to encourage our loved ones to stay socially engaged. My dad has Parkinson’s, and lately, he’s become hesitant about leaving the house. Tasks that used to be second nature, like attending church, something he’s valued deeply his entire life, now feel daunting. His voice has gotten softer, and he’s self-conscious about people not hearing him. Some days, he even tries to skip his boxing classes, designed specifically for people with Parkinson’s. But our family gently nudges him to go because we see how much it lifts his spirits, not just his strength.
Why the Glow Is Worth the Crash
Then there’s my loved one with Alzheimer’s. Taking her out in public can be complicated. She gets agitated and confused, especially in unfamiliar places. Yet, when surrounded by supportive family and friends, she can truly enjoy herself, though she crashes hard afterward. I recently read a story about a caregiver worried about taking her grandmother to a wedding, fearing she might unintentionally distract attention from the bride and groom. Ultimately, the caregiver realized that most people didn’t notice her grandmother’s confusion; they only saw her happiness.
Inspired by that story, we decided to bring our loved one to Fourth of July gatherings. She'd always been an extrovert, and the party atmosphere sparked something beautiful in her. Friends showered her with affection, and her joy was palpable. True, she forgot about the event shortly after returning home, and the emotional crash afterward was tough. Yet, the glow of happiness she carried, even momentarily, was worth it.
Even though social activities can be draining for caregivers too, seeing the joy and happiness in our loved ones makes it worthwhile. Sometimes we caregivers need to crash too. It’s completely okay for you, as a caregiver, to feel exhausted and to need your own recovery afterward. Alula is here to help you navigate these moments, celebrate the small joys, and support you on every step of your caregiving journey.
You're not alone, and neither are they.
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